Butterfly Talk

Education about Epidermolysis Bullosa, support and encouragement, tips and general information regarding advocacy and need for awareness. Would like to be a guest and talk about your EB experience? Message me!!

https://www.blogtalkradio.com/butterflytalk

subscribe
share






Special Guest Francesca Tenconi Talks About Camp Wonder & the CSDF


In 1996, Francesca Tenconi was diagnosed with Pemphigus Foliaceous, a life-threatening auto-immune based skin disease. She and the other children she met while receiving medical care felt isolated and had no organization focusing on the unique challenges faced by children with such visual diseases. On her 16th birthday in 2000, Tenconi established the Children's Skin Disease Foundation to raise funds for research for the treatment and potential cure of several skin diseases that affect children.  In 2001 Tenconi established Camp Wonder as a summer camp for children who suffer from skin diseases in order to give them the sense of normalcy and the normal experiences that children have during the summer.


fyyd: Podcast Search Engine
share








 March 31, 2016  28m