Gesamtlänge aller Episoden: 6 days 19 hours 18 minutes
Dr. Anselm is a member of MitoAction's medical advisory committee and practices in Child Neurology at Children's Hospital Boston. Her research is focused on clinical presentation of children with mitochondrial disorders and their response to therapy.
MitoAction welcomes Carole Slipowitz PhD and Maggie Orr RN M.Ed this month to discuss the challenges of dealing with a diagnosis of mitochondrial disease. Any chronic illness can be overwhelming - for a child, a family, or an adult with the condition. However, due to the unpredictability, complexity of symptoms, and uncertain prognosis, a diagnosis of mitochondrial disease is especially stressful...and exhausting.
This topic is dramatically important to the parents of children with complex gastrointestinal presentations of mitochondrial disease. MitoAction addresses this topic today in response to the increasing number of accusations of child abuse and Munchausen by proxy that have been placed upon many parents of children struggling from the devastating symptoms of mitochondrial disease.
MITO Meeting Aug 7, 2009 with Lee Jurman from Personal Disability Consulting on the topic: "To work or not to work: Tough choices for adult Mito patients"
Solace Nutrition and Medical Foods joins MitoAction July 10th for a toll-free teleconference to discuss medical foods, how they interact with electron transport chains and more.
Join us as expert Deb Pfister from NutriThrive discusses g-tubes, j-tubes, TPN and the ins and outs of parenteral and enteral nutrition for adults and children who need alternatives to food for nutrition and hydration.
MitoAction is excited to welcome Dr. James Dykens, Director of Investigative Cellular Toxicity at Pfizer Drug Safety Research & Development and author of the 2008 book "Drug Induced Mitochondrial Dysfunction".
Palliative care and hospice: Focus on quality of life with guest speaker Dr. Patricia O'Malley from Massachusetts General Hospital
MitoAction welcomes Jack Raycroft for a discussion on special needs planning. MitoAction meeting March 6 2009.