Audio Podcast

The official MitoAction podcast is a monthly call often with physicians who are experts on mitochondrial disease. Mitochondrial disease occurs when the mitochondria(the powerhouse of a cell) are unable to effectively generate energy during food metabolism. Approximately one in 4000 adults and children have mitochondrial disease ("Mito"). MitoAction is a non-profit organization dedicated to support, education and advocacy for the mitochondrial disease patient community.

http://www.mitoaction.org/audio-podcast

Eine durchschnittliche Folge dieses Podcasts dauert 1h9m. Bisher sind 146 Folge(n) erschienen. .

Gesamtlänge aller Episoden: 6 days 19 hours 18 minutes

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Overwhelmed No More


Tips from special needs coach Joan Celebi.


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 December 8, 2009  57m
 
 

Update on Mito Treatment Approaches


Dr. Anselm is a member of MitoAction's medical advisory committee and practices in Child Neurology at Children's Hospital Boston. Her research is focused on clinical presentation of children with mitochondrial disorders and their response to therapy.


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 November 9, 2009  44m
 
 

Coping with Mitochondrial Disease


MitoAction welcomes Carole Slipowitz PhD and Maggie Orr RN M.Ed this month to discuss the challenges of dealing with a diagnosis of mitochondrial disease. Any chronic illness can be overwhelming - for a child, a family, or an adult with the condition.  However, due to the unpredictability, complexity of symptoms, and uncertain prognosis, a diagnosis of mitochondrial disease is especially stressful...and exhausting.


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 October 5, 2009  1h5m
 
 

Munchausens by Proxy accusations in Children with Mitochondrial Disease


This topic is dramatically important to the parents of children with complex gastrointestinal presentations of mitochondrial disease.  MitoAction addresses this topic today in response to the increasing number of accusations of child abuse and Munchausen by proxy that have been placed upon many parents of children struggling from the devastating symptoms of mitochondrial disease.


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 September 8, 2009  54m
 
 

To Work or Not to Work


MITO Meeting Aug 7, 2009 with Lee Jurman from Personal Disability Consulting on the topic: "To work or not to work: Tough choices for adult Mito patients"


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 August 10, 2009  1h12m
 
 

Medical Foods for Mito


Solace Nutrition and Medical Foods joins MitoAction July 10th for a toll-free teleconference to discuss medical foods, how they interact with electron transport chains and more.


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 July 10, 2009  54m
 
 

Home Nutrition Support with guest Deb Pfister from NutriThrive


Join us as expert Deb Pfister from NutriThrive discusses g-tubes, j-tubes, TPN and the ins and outs of parenteral and enteral nutrition for adults and children who need alternatives to food for nutrition and hydration.


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 June 8, 2009  59m
 
 

Drug Toxicity and Mitochondria


MitoAction is excited to welcome Dr. James Dykens, Director of Investigative Cellular Toxicity at Pfizer Drug Safety Research &  Development and author of the 2008 book "Drug Induced Mitochondrial Dysfunction".


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 May 1, 2009  1h7m
 
 

Palliative care and hospice


Palliative care and hospice: Focus on quality of life with guest speaker Dr. Patricia O'Malley from Massachusetts General Hospital


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 April 3, 2009  47m
 
 

Special needs planning workshop with Jack Raycroft


MitoAction welcomes Jack Raycroft for a discussion on special needs planning.  MitoAction meeting March 6 2009.


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 March 9, 2009  1h1m