Education about Epidermolysis Bullosa, support and encouragement, tips and general information regarding advocacy and need for awareness. Would like to be a guest and talk about your EB experience? Message me!!
https://www.blogtalkradio.com/butterflytalk
Gesamtlänge aller Episoden: 14 hours 2 minutes
Special Guest Jessica Kenley, talks about EB and her books
Jessica lost two of her children to the Junctional-Herlitz subtype of Epidermolysis Bullosa during their infancy and wrote about it.
Special Guest Jessica Kenley, talks about EB and her books
Jessica lost two of her children to the Junctional-Herlitz subtype of Epidermolysis Bullosa during their infancy and wrote about it.
Raising Epidermolysis Bullosa Awareness with my book Butterfly Child
The Host of the Podcast Silvia Corradin talks about her book "Butterfly Child: A Mother's Journey", her other books, websites etc.
Raising Epidermolysis Bullosa Awareness with my book Butterfly Child
The Host of the Podcast Silvia Corradin talks about her book "Butterfly Child: A Mother's Journey", her other books, websites etc.
Special Guest Derra Nicole Sabo, talks about having EB and her books
Special guest Derra Nicole Sabo is 30 years old and lives in Apple Valley, California. She was diagnosed at birth with Recessive Dystrophic Epidermolysis Bullo
Special Guest Derra Nicole Sabo, talks about having EB and her books
Special guest Derra Nicole Sabo is 30 years old and lives in Apple Valley, California. She was diagnosed at birth with Recessive Dystrophic Epidermolysis Bullo
Special Guest Heather Fullmer, talks about being an EB mom & the EBRP
Special Guest Heather Fullmer talks to us today about being an EB mom and shares about what it means to her to be one of the founders of the EB Research Partner
Special Guest Heather Fullmer, talks about being an EB mom & the EBRP
Special Guest Heather Fullmer talks to us today about being an EB mom and shares about what it means to her to be one of the founders of the EB Research Partner
Special Guest Lorraine Montello, talks about being an EB mom & Montello Foods
Special Guest Lorraine Montello talks to us today about being an EB mom and shares details about her business venture, Montello Fine Foods, which she started wi
episode 2: Special Guest Lorraine Montello, talks about being an EB mom & Montello Foods
Special Guest Lorraine Montello, talks about being an EB mom & Montello Foods