The official MitoAction podcast is a monthly call often with physicians who are experts on mitochondrial disease. Mitochondrial disease occurs when the mitochondria(the powerhouse of a cell) are unable to effectively generate energy during food metabolism. Approximately one in 4000 adults and children have mitochondrial disease ("Mito"). MitoAction is a non-profit organization dedicated to support, education and advocacy for the mitochondrial disease patient community.
http://www.mitoaction.org/audio-podcast
Gesamtlänge aller Episoden: 6 days 19 hours 18 minutes
Mito-Autism Q&A and Parent/Patient Discussion of Mitochondrial Toxicity
Mito-Autism Q&A and Parent/Patient Discussion of Mitochondrial Toxicity
Mitochondrial Disease and Toxins
Mitochondrial dysfunction has been identified as an important factor in many diseases and conditions beyond primary mitochondrial disease, including autism, ALS, Parkinson's, Alzheimer's, and diabetes. Exposure to toxins via medication, lifestyle, and the environment may lead to mitochondrial dysfunction, cell damage and organ dysfunction. Join us this month with Dr. Kendall Wallace, Ph.D., DABT, ATS to learn more about mitochondrial disorders which may be acquired by or aggravated by toxins.
Mito Supplement Therapy
What is "the Mito Cocktail"?Referring to the combination of vitamins and supplements used as therapies in the treatment and management of mitochondrial disease and mitochondrial dysfunction, the "Mito Cocktail" is unique to every patient. Join us with compounding pharmacist Ted Toufas PharmD RPh from Acton Pharmacy to learn more...
Back to School Tips
It's that time of year ... summer comes to a close and children everywhere are going back to school! While a relief for some families, going back to school can be stressful for parents of children with mitochondrial disease.
Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) with Annette Hines, Esq. and Tai Venuti, MPH
Overview of SSI and SSDI programs;The differences between SSI and SSDI;Social Security’s definition of disability as it pertains to mitochondrial disease;How SSDI is designed to work, eligibility criteria, and the full range of SSDI benefitts;The application and appeals processes for SSI and SSDI;
Getting Involved: Awareness Walk & Events 2015
Join Mitoaction as we discuss how to get involved with the Awareness Walk & Events in 2015.
Basics of Estate Planning and Special Needs Trusts with special guest speaker Annette Hines, Esq.
Please join MitoAction as we welcome Annette Hines, Esq., founding partner of the Special Needs Law Group of Massachusetts. Ms. Hines will be speaking on the basics of estate planning and special needs trusts laws in the U.S.
Cannabis oil to treat mitochondrial disease
Dr. Fran Kendall gives the answers to these questions and more regarding the use of medical marijuana (cannabis oil) for treatment in mitochondrial disease patients...
Stealth BT mitochondrial myopathy trial
Join us with Stealth BioTherapeutics CEO Travis Wilson and others from the Stealth BT team for a live update from Stealth BT, information about Bendavia, and details about StealthBioTherapeutics' 2015 mitochondrial myopathy clinical trial.