Education about Epidermolysis Bullosa, support and encouragement, tips and general information regarding advocacy and need for awareness. Would like to be a guest and talk about your EB experience? Message me!!
https://www.blogtalkradio.com/butterflytalk
What is Butterfly Talk?
A quick podcast to test the waters, explaining why I decided to start this and what Epidermolysis Bullosa is in general and what my son goes through on a daily basis. My son Nicky has the Recessive Dystrophic form of EB. This blog talk radio podcast will feature guests and will be a permanent part of the ebinfoworld.com website. I start this podcast in conjuction with the upcoming release of my book "Butterfly Child", my journey from the stillbirth of my first son Alex, followed by a miscarriage and the birth of my son Nicky and what life has been like for him and us for the past 20 years.