The official MitoAction podcast is a monthly call often with physicians who are experts on mitochondrial disease. Mitochondrial disease occurs when the mitochondria(the powerhouse of a cell) are unable to effectively generate energy during food metabolism. Approximately one in 4000 adults and children have mitochondrial disease ("Mito"). MitoAction is a non-profit organization dedicated to support, education and advocacy for the mitochondrial disease patient community.
http://www.mitoaction.org/audio-podcast
Incapacity Planning and Guardianship
As patients or caregivers, it is frightening to think about what would happen if we could not advocate for ourselves. Fortunately, there are legal documents that can be used to communicate our wishes under such circumstances. This type of legal preparation is called incapacity planning and guardianship.