Education about Epidermolysis Bullosa, support and encouragement, tips and general information regarding advocacy and need for awareness. Would like to be a guest and talk about your EB experience? Message me!!
https://www.blogtalkradio.com/butterflytalk
Raising Epidermolysis Bullosa Awareness with my book Butterfly Child
The Host of the Podcast Silvia Corradin talks about her book "Butterfly Child: A Mother's Journey", her other books, websites etc. Just before her 30th Birthday, Silvia found out she was pregnant with her first baby, which was stillborn at full term on March 1, 1995. After a miscarriage she had Nicky, diagnosed shortly after birth with Recessive Dystrophic Epidermolysis Bullosa. Nicky is 18 now and the struggles and pain he's been through are immense. Does she dare hope for a future for him? Yes. But it's not easy. http://www.butterflychildamothersjourney.com