Year Of Preventable Damage Done To Clare Boy Due To Delays In Accessing 'Miracle' CF Drug
A South East Clare mother says a year's worth of preventable damage has been done to her son due to delays in accessing a 'life-changing' cystic fibrosis drug. An ongoing price dispute between the HSE and pharmaceutical company Vertex has led to 35 children, including two in Clare, deteriorating in their illness. Emma Fitzpatrick from Sixmilebridge and Barbara Buckely from Ennis have been talking to Clare FM's Morning Focus about the wait for their children to access Kaftrio.